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Thursday 20th June 2019

Cerebral palsy families start campaign

20th June 2011

Families of children with cerebral palsy have created a group in order to receive more support from the health service.


Their children are in the US so they can receive micro-neurosurgery, known as selective dorsal rhizotomy (SDR), so they can walk.

The Support4SDR group said they wanted to see this treatment available on the NHS to all patients who required it.

The Department of Health stated that doctors could think about providing the treatment to patients on the condition that results were recorded.

Kim Wakefield, the head of the group, said the NHS also needed to provide more assistance with physiotherapy.

Support4SDR have set up a charity, begun an online petition and are getting in touch with MPs.

Mrs Wakefield said the group's main aim was to ensure the newest method of SDR was more available to patients in the UK.

She explained that families had been "left in the dark" by the NHS about how the newer type of SDR was available in America.

A Department of Health spokesperson said: "NICE has advised that selective dorsal rhizotomy can improve spasticity in the longer term and doctors can consider offering the treatment as long as its results are monitored."

"As the side effects and risks of the treatment can be serious, NICE expects doctors to carefully explain these to the patients and their families or carers beforehand."


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