Cinderella carers live in fear27th August 2008
Most carers of people with lung conditions have no practical help at all, even though they are dealing with frightening attacks of breathlessness that require frequent hospitalisation, according to a new survey by the British Lung Foundation.
In the BLF survey, more than a quarter (26%) of carers say a sudden worsening of symptoms such as extreme breathlessness has resulted in the person they care for being rushed to hospital at least six times in the past five years. One in 20 (5%) say this has happened more than 10 times in the past five years and most (85%) feel frightened when this happens. Nearly two fifths (39%) said they feel helpless and more than a third (36%) said they worry the person they care for is going to die.
Yet the survey shows that nearly three quarters (72%) of such carers have never received any practical support in their caring role and a staggering 83% have never had their needs assessed by social services. Many respondents said that they didn’t think anyone cared about them.
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