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Sunday 20th May 2018

Glasgow NHS review therapy

21st November 2006

A review is underway to decide whether to fund a £100,000-a-year treatment for an eight-year-old girl with a rare degenerative condition.

NHS Greater Glasgow and Clyde had told the parents of Hayleigh Reynolds they would not pay for the enzyme replacement therapy because it had not been approved for use by the NHS in Scotland.

Her family had raised a judicial review of the decision at the Court of Session, saying she was the only patient in the UK to be refused the drug Laronidase.

Hayleigh has a form of Mucopolysaccharidosis known as Hurler syndrome, which is caused by an enzyme deficiency.

Now the health board are to review the decision, and will reveal their findings in December.

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